Late June I brought Bruce in to our new developmental pediatrician (I've switched all the kids over to this great doctor at Children's Specialty Clinic and they each needed a full diagnostic appointment). His hearing has increased - the Eustachian tube that was originally narrow has grown as he aged. So, that is really wonderful news!
The Doctor said he's considering an Apraxia label (pending a follow up eval in 3 months) which is a motor speech disorder. I'm not concerned because even in just the past couple months he has really expanded and improved his language! He's made so much progress and very much on the right track.
He's joined his siblings at Fraser and now attends twice a week for Speech Therapy & OT. We also had our first Behavioral Therapy session today. After a long qualification & diagnostic process we've finally begun our in-home sessions. This basically means that a therapist works with Bruce AND ME on some behavioral and sensory issues. A lot if it is learning some appropriate parenting strategies & practicing putting them into place with the therapist present. So much of what I'm learning applies to all the kids though, so it's a really worthwhile thing!
Can you believe these photos were taken only TWO MONTHS apart? He aged a full year with one haircut. Okay, I cut a bunch of hairs. And I did a terrible job and cried for weeks. But it doesn't change his vibrant personality, so I'm learning to forgive myself! :) This boy keeps us all so entertained - he is so full of joy. Bruce is always bringing me so much healing - my cup runneth over.
Fantastic gardening buddy! I can never get enough of his snuggles!
Like a boss. Sleeping with an older woman.
Mommy-Brucie selfie at Zoo Camp!
These past few months have not been without their share of heartache. Dan's stepfather passed away in May, after a very long battle with dementia, cancer, and other medical challenges. I am in awe of the strength my Mother in Law has and in admiration of her trust in the Lord. Just a few days later Dan's grandpa passed away as well. Although he lived a long and full life and is rejoicing in Heaven now, we will still miss him. He was a very good man and had such a gentle nature. Dan is so much like him.
We also lost another baby & had a change in roommates. I attended a homeschool conference in April, Dan's been busy with softball and work, a friend is here from Canada visiting for the summer, and we've packed the calendar to the brim.
She's had the most eventful 4 months of us all. We quit going to the eating disorder clinic and I opted to have her gastroparesis managed by her GI doc. There is a conflict of her "meal pill" with another med so we had to have monthly EKGs. There's never been any heart issues but it wasn't worth the risk so we ditched the anxiety meds after 6 years.
She was seen at the Neurologist for staring spells & an ambulatory EEG was done. Since the findings were normal, she's been falling asleep all day in almost any setting, she's having trouble breathing at night, and zoning out, she was recommended for a sleep study.
First she wore an atigraphy watch for 2 weeks then did an overnnight sleep study followed by a daylong nap study. She does have sleep apnea with several episodes of pauses in breathing. The sleep doctor was hesitant to give her a Narcolepsy label since it follows you for life (like it even goes on your drivers licence) so the plan is to have her tonsils and adenoids removed, practice strict sleep hygiene for a month post-op then repeat the sleep study. Stimulants would help but we hesitate to put her on them with her weight issues.