I am on my way to Mommy-Baby class with Bruce when I get a call on the results of Dean's EEG on Friday. (You can read more of Dean's story here.) That was a rare opportunity to spend time with just Dean, too bad it was for a test to determine to what extent his staring spells have been the result of neurological issues. (I can't get technical here because I don't really understand all the details and am way overwhelmed and sleep deprived these days.)
My little guy loves numbers, letters, and colors. So I picked up this reusable book about numbers where you "paint" with water. That book was a lifesaver during the test - this mom knows her kiddos well!
The nuerologist initially thought that Dean's frequent night-terror-like episodes were not a contributing factor in his increasing staring spells. Although a sleep study should be done to rule out any possible issues, the night terrors were likely not a huge concern. However, since seizures and autism can go hand-in-hand, and there has been some regression with his skills, and the "dissapear and no idea where he goes or what he's thinking" instances were occuring more often, an EEG needed to be done.
Getting all this goo in his hair, hooking up tons of wires with stickers on his head and chest, wrapping his head in gauze (totally looked like a mummy), and getting him to sit still for 45 minutes required some creativity, but that number book sure helped! [So I forgot to take a photo while he was all hooked up, since he was in my lap and the phone was not, but I did manage a snapshot of the hair goo - think warm candle wax.]
The worst part was actually trying to wash his hair out afterward- he's got some pretty major sensory issues with that. He may dump water on his head in the bath for the sake of comedy (he does it to make Bruce laugh) but this was NOT the same!
As I look at this precious, happy, silly boy my heart breaks. I have supreme confidence God is with us in this journey and has plans for this child, but I am scared of what might come next. Life doesn't always look exactly how I'd imagined it would "when I grow up," and yet, I can no longer imagine a life without cars sorted by Disney character or by size or color. Why on earth would you ever want to drive them around when you can count them?! :)