She has come so very, very far since then - it took years of occupational therapy and "brush" therapy & joint compression (where I spent tons of time each day using a sensory brush on her body) just to get her to wear socks. And this is still a pretty huge daily struggle 7 years later.
Now that she has actually LOST weight (and gained an inch - woo-hoo!!) and her pants are fallling right off, the concern is great. She has become very weak and has osteoporosis. She is working hard in Physical Therapy each week and I am so proud of her persistence to gain strength!